23.11.07 We are home! Reid's operation went very well. Instead of a cast on his right leg he has a metal frame to support the fibular as it is the width of a pencil! He will have this on for approximately 3 months then it will be replaced with a leg brace of which he will have have for a year...but the best news is that the pathology report on Reids Tumour said that there is no residule cancer present therefore the chemo killed the cancer!! Not much else to say really. We have to go back to see the Oncologist and the Plastic Surgeon on Thursday next week and until then I just have to clean Reids Pin sites daily and change dressings and give anti biotics....but no hospital visits for a whole week!
(The pin sites are where the pins go into his leg..see pic)
we will commence post op chemo sometime week starting 25th November. which protocole we have to do I am not sure on yet but am hoping it will be one of the lower ones with only eight more treatments. I will keep you posted. xx
Thursday, November 22, 2007
Saturday, November 10, 2007
YOU TUBE
The Animal Song by Savage Garden has become Reid's Anthem..we have to play it everytime we drive into and out of Brisbane. Somehow it inspires him. I love the lyrics they give me goosebumps and make me cry.
Childhood Cancer...I put this link in...all of the videos are very confronting but I thought we should all be reminded that Reid is no the only one going through this ordeal...the top pic (the Black one) is my favourite.
Childhood Cancer...I put this link in...all of the videos are very confronting but I thought we should all be reminded that Reid is no the only one going through this ordeal...the top pic (the Black one) is my favourite.
Next Big Step is looming
Reid's body seems to have handled the last lot of chemo so well. We did not have to go back into hospital and his spitting ceased two days after it started. However he did need two more blood transfusions, one Platelets on Saturday night and some Red Blood cells on Tuesday. So far Reid has had 9 Blood transfusions and 6 Platelet transfusions! He handles these well and the difference this makes to him is unreal. On Tuesday we also had a CT Scan to check on the spot on Reids lung. This came back positive too. The spot is still there but is now only a slight shadow. This could mean two things; 1. that it was bacteria and it is mending itself, or 2. it was a metastisis and the last bout of chemo nuked it! So Dr Tim is not ruling out radiation yet. This decision will be made when they do a histology on the tumour after it is removed Wednesday night.
Reid also had an ultra sound on his left leg to see where the main blood vessels are for the Plastic surgeon. When they remove the Fibular from Reids Left leg they will take the blood vessel too and reattach it to the blood vessel in his right leg.
On Friday morning Reid had surgery to replace his central line and remove the PICC line from his arm. He was looking forward to this as the PICC line was quite awkward and often in the way (especially when playing Playstation!) Once again he recovered well from the surgery and we headed home to Toowoomba around 2pm!
Coming Home has been fantastic. Unfortunatley, with Reid's school being hit with Parvo virus he was unable to see any of his little friends. But Keanu, one of his best friends phoned him, and Katie dropped of a picture for him...she slid it under the door...how beautiful, and how lucky Reid is to have so many friends thinking of him.
Reid and I will head back to Brisbane Tuesday morning. He has to have a blood count to make sure all is OK for Wednesday. We are also seeing an Occupational Therapist who will talk to Reid about his operation. In terms of pain, and what to expect when he wakes up. We will also be seeing The Orthopedic Surgeon, Dr Steadman, for a final chat about the operation and if all is the same we will be admitted into the Wesley Hospital Wednesday Morning (14th November)and the surgery will commence late afternoon. I will keep as many people posted as I can, thank you for all your love and prayers. Jo xx
Reid also had an ultra sound on his left leg to see where the main blood vessels are for the Plastic surgeon. When they remove the Fibular from Reids Left leg they will take the blood vessel too and reattach it to the blood vessel in his right leg.
On Friday morning Reid had surgery to replace his central line and remove the PICC line from his arm. He was looking forward to this as the PICC line was quite awkward and often in the way (especially when playing Playstation!) Once again he recovered well from the surgery and we headed home to Toowoomba around 2pm!
Coming Home has been fantastic. Unfortunatley, with Reid's school being hit with Parvo virus he was unable to see any of his little friends. But Keanu, one of his best friends phoned him, and Katie dropped of a picture for him...she slid it under the door...how beautiful, and how lucky Reid is to have so many friends thinking of him.
Reid and I will head back to Brisbane Tuesday morning. He has to have a blood count to make sure all is OK for Wednesday. We are also seeing an Occupational Therapist who will talk to Reid about his operation. In terms of pain, and what to expect when he wakes up. We will also be seeing The Orthopedic Surgeon, Dr Steadman, for a final chat about the operation and if all is the same we will be admitted into the Wesley Hospital Wednesday Morning (14th November)and the surgery will commence late afternoon. I will keep as many people posted as I can, thank you for all your love and prayers. Jo xx
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