Reid and I arrived back home yesterday (21.08.07) at around 2pm. Reid was last home July 25th. In the past month he has been in and out of hospital three times for three seperate things. The first being Influenza A, the second being Chemo and the third for Mucositis. Over the past month Reid has had three blood transfusions, one platelets transfusion, countless Anti-biotics, litres of fluids, toxic chemotherapy, and mostly all in isolation as we had been in contact with Chicken Pox so we were a threat for 28 days!
Reid lost weight again after this lot of chemo and a dietitian spoke to me at length about getting the "Tube". This is a feeding tube inserted into the kids noses and down into their stomaches so that they can be fed high protein/fat meals regularly. On the good side all Reids Oral Meds can be given via the tube so he doesnt have to worry about yucky medicines anymore. Looking at Reid we can see that he needs this, but he is absolutely petrified of the procedure. I actually think he would prefer 100 needles in preference to getting this done. I enquired about going under anaethetic for it but this is rarely done unless he has some surgery scheduled. Anyway, no doubt it will happen when we get back to Brisbane.
I am writing this whilst monitoring Reid's temp as it seems to be up a little. We are told that if the temp goes to 38 or above on 2 seperate occasions we are to go straight to emergency. Perhaps his little body is just adjusting itself to Toowoomba!
Today is a little cool and windy but not as bad as last time we were home, I am so paranoid of germs so I am keeping Reid pretty close to home for this stay so we have a clear run for cycle 4 scheduled for the 31st August.
Mum will come back on Wednesday the 29th and then we will head down to Brisbane on the 30th. Reid needs a chest x-ray, and blood tests done so we can proceed on the Friday.
After this lot of chemo we will have the Stem Cell Harvest, Another set of scans for Disease Evaluation, and a meeting with the Orthopedic Surgeon to discuss the type of surgery Reid will need in November. So we have a big month in September. I will keep you posted...love all your messages! thanx xxx
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2 comments:
Hi Jo,
The girls are up in Sydney for a couple of days at a horse thing , and Hughie and I are at home, and we've been discussing the feeding tube thing and you can tell Reid that we reckon with all the stuff that he's been through, he has to be one of the bravest kids that we know, so the tube would have to be easy-peasey for him if he puts his mind to it! And having just cooked dinner and washing up still to be done, the tube has got to be a lot less washing up!
Lots of love,
P. and H.
Hello Reid. This is Hayden Dorge from 1C. We have been reading your blog. We have some pets in the classroom. We have hermit crabs, mice, budgies and fish. I dressed up as Harry Potter for book week last week. I have to go to bed now. I hope your treatment goes well this week. Bye from Hayden.
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